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"FERTILITY DAY" 22 SETTEMBRE 2016

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Interregionale del Centro 22-23-24 marzo 2013

Interregionale del Centro                         versione stampabile   

Roma 22-23-24 marzo 2013

 

Venerdì 22 Marzo 2013

 

Nobile Collegio Chimico Farmaceutico

Universitas Aromatariorum Urbis

Chiesa S.Lorenzo Dé Speziali in Miranda

Via in Miranda,10

Ore 16,30 : Inaugurazione dell’Interregionale A.M.M.I. del   Centro

                 Celebrazione 40ennale della Sezione di Roma

                 Benvenuto della Presidente Guya Paolini e della

                 Presidente Nazionale Maria Grazia Tatti

Saluto delle Autorità:

Ore 17,00   Le Malattie Rare:

                “I Pazienti e la Rete”

                 CONVEGNO DELL’A.M.M.I.

Moderatore Dott.ssa Manuela Lucchini

                 Lettura Magistrale

                 “Cosa stà cambiando nelle malattie genetiche rare”?

                 Prof. Bruno Dalla piccola

     Direttore Scientifico Ospedale Pediatrico Bambino

     Gesù-Membro Comitato- Nazionale per la Bioetica

                 Rappresentante italiano dell’EUCERD.

Ore 17,30   Dott.ssa Domenica Taruscio

                 Director – National Centre for Rare Diseases

                 Istituto Superiore di Sanità

                 “La rete nazionale per le Malattie Rare”

 Ore 17,50 Dott.ssa Renza Barbon Galluppi

                 Presidente U.N.I.A.M.O.

                    “Il ruolo delle Associazioni nell’accreditamento centri di riferimento  

                 delle “Malattie Rare”

Ore 18,10   Dott.ssa Simona Bellagambi

                 Membro CD EURORDIS  European Organisation of  

                 Rare Diseases        

                 Rappresentante U.N.I.A.M.O. FIMR nel Consiglio delle

                 Alleanze EURORDIS

                 “Il progetto Europeo per le Malattie Rare”

Ore 18,30   Discussione

Ore 19,00   Dr. Andrea Bartuli

                 Responsabile UO Malattie Rare e UO Genetica Clinica-

                 Ospedale Bambino Gesù - Roma

                “La terapia personalizzata per il paziente con Malattia

                 Rara”

Ore 19,20 Consegna Borsa di Studio per:

                 “Progetto pediatrico di prevenzione della malattia cardiovascolare

                 nell’adulto”

Ore 20,00   “Cena conviviale”

                 Museo di Arte Farmaceutica – Via in Miranda,10

Ore 23,00   (Transfer in pullman all’Hotel Royal Santina)    

 

 

Sabato 23 Marzo  2013

                   

                 BW Premier Hotel Royal Santina – Via Marsala,22

                 Sala Lucrezia

Ore 8,30     Registrazione  delle partecipanti

Ore 9,00     Apertura lavori

                 Guya Paolini Conti /Presidente A.M.M.I. Roma

                 Maria Grazia Tatti – Presidente Nazionale A.M.M.I.

Ore 9,30     Relazioni componenti, la Giunta Nazionale,

                 le Commissioni , le Fiduciarie    Regionali  

                 Votazione Tema Nazionale e Sede Interregionale 2014

Ore 11,00   Coffee break

Ore 11,15   Ripresa lavori e interventi

Ore 13,00   Chiusura lavori

                 Colazione libera per shopping

Ore 17,00   Transfer in Pullman dall’Hotel Royal Santina a Villa

                 Sanna, Cena  dell’amicizia (Via Appia Antica 201)

Ore 22,00   Transfer in pullman all’Hotel Royal Santina

 

 Domenica 24 Marzo 2013

 

Ore 10,00   Visita guidata al Museo Nazionale Romano di Palazzo

                 Massimo, Largo di Villa Peretti,1 –(Piazza dei Cinquecento)

 

Scheda di prenotazione alberghiera

BW Premier Hotel Royal Santina 4*: Via Marsala,22 Roma

Per informazioni rivolgersi alla Signorina Nicoletta Coljca-Tel. 06.44875219 – Fax 06.4457205 – Email: reserv@rhr.itA conferma delle prenotazioni da effettuarsi entro il 10 Febbraio 2013 si prega di versare, tramite bonifico bancario, la metà dell’importo totale e di specificare ai fini della fatturazione i dati anagrafici, compreso il codice fiscale.

Coordinate bancarie del BW Premier Hotel Royal Santina –

Santina S.p.A. – Banca Popolare dell’Emilia Romagna – Via Marsala,22

IBAN – IT34  H053  8703 2020 0000 1073 344

Il Comune di Roma dall’ 01/01/2011 ha istituito la tassa di soggiorno, un’imposta a carico del Cliente pari a euro 3,00 per persona per notte che dovrà essere saldata prima del check-out, direttamente da parte dei Clienti.

Nome……………………………………………………………………….

Cognome……………………………………………………………. ……

Indirizzo…………………………………………………………………….

Cap…………………………………………Città…………………………

Tel..……………………………………….Email………………………….

Qualifica A.M.M I………………………………………………………….

Accompagnatori  …………………………………………………………

Data arrivo………………Data partenza ………..……………………….                   

Totale  n. notti  ………………Camera Singola       €  90,00 a notte

Totale n. notti ………………  Camera Doppia       € 110,00 a notte

Prima colazione a buffet inclusa .

 

Scheda  di prenotazione Interregionale – entro 10 Febbraio 2013 

Nome……………………………………………………………………………

Cognome……………………………………………………………………….

Indirizzo…………………………………………………………………………

Cap………………………………………Città…………………………………

Tel…………………………………….Email…………………………………..

Qualifica A.M.M.I………………………………………………………………

Accompagnatori……………………………………………………………….

Data di arrivo……………………………Data di partenza…………............

  • Iscrizione Interregionale……………………€   16,00
  • Cena conviviale…………………………… .€   70,00
  • Transfer in pullman………………………    €   25,00
  • Visita guidata al Museo Nazionale
  • Romano di Palazzo Massimo………….. …€ 10,00
  • Cena dell’amicizia a Villa Sanna –offerta dalla Sezione di Roma
  • Coffee break – offerto dalla Sezione di Roma

Modalità di pagamento

Bonifico dell’intero importo intestato a Marcoccia Palma – Oggetto: prenotazione Interregionale del Centro

Codice IBAN – IT48 J076 0103 2000 0009 4461 605

Inviare o faxare la scheda  di prenotazione all’interregionale unitamente a copia del versamento  entro il 10 febbraio 2013 a:

Giuseppina Araco – Vice Presidente – Tel/Fax 067015718 – Email p.araco@tiscali.it

Maria Teresa Boni – Segretaria – Tel/Fax 0645422040 – Email teresa.boni@live.it

Segreteria Scientifica:

Andrea Bartuli

Responsabile UO Malattie Rare e UO Genetica Clinica – Ospedale Bambino Gesù Roma

Email - andrea.bartuli@opbg.net

Guya Paolini Conti

Presidente Sezione A.M.M.I. Sezione di Roma - tel.3396170391

Email - guya.conti@libero.it

Rosanna Mastrangelo Fain Binda

Past President Nazionale A.M.M.I. - tel 3498131620

Email - ammi.roma@virgilio.it

       Segreteria Organizzativa:

Anna Rita Manna

Email- annaritamann@gmail.com

Giuseppina Araco

Email- p.araco@tiscali.it

Antonietta Cervelli Casciani 

Tel.Fax-06.70300445

Maria Teresa Boni

Email- teresa.boni@live.it

 

 

                                              

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